Actualités

Sickle Cell Disease News1 j
World Sickle Cell Day events include walks, vigils, building lights
Illuminating public buildings in red, candlelight vigils, and walks are among events planned for World Sickle Cell Day, June ...
Sickle Cell Disease News6 j
Sickle cell disease cell therapy named FDA orphan drug
BEAM-101, a genetically modified cell therapy for sickle cell, is designed to turn on HbF to counteract mutated adult ...
Sickle Cell Disease News7 j
Silence of sickle cell in children doesn’t always indicate mild disease
Even if children with sickle cell disease appear asymptomatic, it's still crucial to provide proper care, says columnist.
Sickle Cell Disease News2 j
This World Sickle Cell Day, I’m grateful for UK advocacy groups
In honor of this year's World Sickle Cell Day, columnist Dunstan Nicol-Wilson recognizes several organizations that are making a difference.
Sickle Cell Disease News8 j
I can’t always identify the causes of a sickle cell crisis, despite my efforts
For columnist Mary Shaniqua, who tracks her health closely, not being able to discern the causes of a sickle cell crisis is ...
Sickle Cell Disease News13 j
Oral inhibitor rilzabrutinib granted FDA orphan drug status for SCD
The FDA has granted orphan drug status to rilzabrutinib, an investigational therapy to prevent pain crises in sickle cell ...
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Shaniqua’s Sickle Chronicles
Mary Shaniqua is a sickle cell patient (HbSS) living in the United Kingdom. She was diagnosed with sickle cell at 18 months old and uses “Shaniqua’s Sickle Chronicles” to narrate her experiences, to ...
Sickle Cell Disease News15 j
Algorithm helps reduce unneeded hospital stays for sickle cell children
An algorithm is helping to reduce the number of unnecessary hospital admissions for children with sickle cell.
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Vaso-Occlusive Crisis
Sickle cell disease (SCD) is an inherited disorder caused by a mutation in the gene encoding a subunit of hemoglobin, the protein that carries oxygen in red blood cells. Mutant hemoglobin — called ...
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What Is Sickle Cell Disease?
Sickle cell disease is an inherited disorder that affects red blood cells. People with the disease produce a faulty version of hemoglobin — the protein that carries oxygen throughout the body.
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Approved treatments for sickle cell disease
Sickle cell disease (SCD) may be cured in some individuals by a stem cell transplant. There also are several approved therapies to help manage the condition and its related complications. Some of the ...